RT Book, Section A1 Moons, Philip A2 Fuster, Valentin A2 Narula, Jagat A2 Vaishnava, Prashant A2 Leon, Martin B. A2 Callans, David J. A2 Rumsfeld, John S. A2 Poppas, Athena SR Print(0) ID 1202452782 T1 Psychosocial Profiles in Adult Congenital Heart Disease and Transition to Adulthood T2 Fuster and Hurst's The Heart, 15e YR 2022 FD 2022 PB McGraw-Hill Education PP New York, NY SN 9781264257560 LK accesscardiology.mhmedical.com/content.aspx?aid=1202452782 RD 2024/03/28 AB Chapter SummaryThis chapter discusses different aspects of psychosocial functioning of adults with congenital heart disease (ACHD). Mental health issues, such as depression, anxiety, and posttraumatic stress disorder are common in ACHD (see Fuster and Hurst’s Central Illustration). Intercountry variations have been found, with higher levels in Asia compared to North America or Europe. Patients generally have higher levels of depression, and equal levels of anxiety than people from the general population. Hence, adequate mental health care is pivotal in ACHD. Another important aspect in the counseling of ACHD patients is physical exercise. Exercise capacity is reduced and skeletal muscle function is compromised in patients with congenital heart disease (CHD) compared to healthy individuals. Nonetheless, it is strongly advised that ACHD engage in physical activities, because it yields significant improvements in exercise capacity and psychological functioning. Social areas of concern are employability and insurability, both of which are jeopardized in ACHD. Because CHD is a lifelong disease, young persons with CHD who are transitioning into adulthood are assumed to transfer from pediatric to adultfocused care. Yet, discontinuity of care is prevalent. End-of-life discussions should be part of standard practice in ACHD. Indeed, even when in good health, patients prefer to have discussions about advance care planning and advance directives.